Recently, I had an appointment with my PCP to discuss the details of my recent angiogram. Although my neurologist stated that everything was normal, I want more details. It is my brain. Unfortunately, no further details have been released so far.

I’m relieved that everything is normal; however, I just don’t understand. My stroke was caused by vasculitis or a narrowing of my brain blood vessels after running in the heat. I was diagnosed with RCVS (reversible cerebral vasoconstriction syndrome).  RCVS has a good clinical outcome in 90% of cases. At 6 months post-stroke, my original rehab stated that I would stop making progress; it is evident that they didn’t research RCVS.

My PCP stated that I improve every time he sees me. He said that my recovery has been “wild”. However, I’ve been working everyday for the past 22 months to recover. I’m still not 100% but I’m working on it. My speech therapist keeps me challenged on my auditory processing issues.

Being on disability, with all this time on my hands, I have many projects I want to commit to. My biggest problem is prioritizing them. Most of them include tasks to beef up my resume for when I do return to the workforce.